We have an update to share that we prayed would never come. There is a recurrence. It was confirmed on the MRIs yesterday and in brain tumor clinic today. Annika has spots on her brain and spine and lesions on her liver. Her scans were clear four months ago so it has come back fast. There is no cure for recurrent medulloblastoma, only maintenance therapy. We had a very productive clinic visit today with Anni’s primary neuro oncologist (Dr. Becca) and neurosurgeon (Dr. Madura) and we have the best plan in place at this time.
Annika is scheduled for surgery next Friday, May 24, to have a chemo port placed in her chest as well as an Ommaya reservoir in her head. Assuming she recovers well (which she has in the past), she will start on MEMMAT protocol the first week in June. This will be a year long treatment protocol that is designed to prevent new tumors from forming by cutting off their blood supply.
Please pray for our girl who has given it her ALL to beat this monster. She is strong but she is scared. Please pray for our boys, the fact they cannot keep their sister safe is breaking them. Please pray for Annika’s health care team who has given so much time and energy in their compassionate care of her. This is so incredibly hard on them.
We’re devastated but attacking this with everything we have. Thank you for your support and encouragement. We promise to keep you all updated as her health journey progresses.
